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Wherever you are in your FA Journey, feel empowered to ask for best care.

MyFAjourney | Everyone experiences FA differently. 

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Wherever you are in your FA Journey, feel empowered to ask for appropriate care.

Everyone experiences Friedreich Ataxia (FA) differently.

Being diagnosed with FA can feel overwhelming, but it’s important that you and your family know that you are not alone, and there are resources available to support you. One way to help you deal with the diagnosis is by learning as much as you can about FA and its management.

Because FA can affect many areas of the body, you will have a number of different people on your healthcare team. It’s important that you understand what each member of your team does, so that you direct your questions to the person best suited to answer. Learn more about the members of the healthcare team and their roles __[here](/en/getting-best-care-care/)__.

Patient organisations are a great way to connect with other families and people affected by FA, so that you can help support and learn from each other. See some resources and organizations available to you __[here](/en/helpful-resources/)__.

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What's next after a diagnosis of FA?

__Remember, you can be your own advocate.__ Whether you’re newly diagnosed with Friedreich Ataxia (FA) or have been living with this condition for some time, you can take an active role in your care by speaking up about how you’re feeling and staying informed about the latest management options available to you.

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